Forum Replies Created

  • Yannik

    Member
    January 30, 2024 at 1:07 pm in reply to: What do you think of this new form of Radicava?

    I take Radicava orally and it goes very well. It takes me 2 minutes. Here in Canada it’s paid by the Government.

  • Yannik

    Member
    November 28, 2023 at 1:57 pm in reply to: FDA approves tofersen, now Qalsody, as treatment for SOD1-ALS

    I’m 49 and I live in Prévost, Quebec, I started Tofersen treatments 2 months ago. I’m really looking forward to seeing if I respond well to the medication. Here we have access to 4 medications:

    * Exservan (riluzole oral film)

    * Radicava (edaravone)

    * Relyvrio (sodium phenylbutyrate and taurursodiol) is an oral treatment

    * Qalsody (tofersen)

    Selfie Famille

  • Yannik

    Member
    January 31, 2024 at 8:05 am in reply to: Tofersen medication

    I started in October and I think I see that the disease is starting to stabilize. It is said that it could be better around the 4th month and beyond. Keep me posted if you want.

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