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Advice for New Caregivers
It is important for caregivers, family members, loved ones and friends to learn about ALS when someone close to them has been diagnosed. It is key to remember that each person experiences different symptoms and has different abilities at different stages. One pALS may experience weakness in their hands that effects their fine motors skills initially, while another may notice that they are struggling to be understood. My father became weak and tired easily at first, but his illness progressed slow until his last month. For a couple of years we noticed minor symptoms such as stumbling or holding the steering wheel with an odd grip. Then within a few short months he went from walking short distances (from the kitchen to the den) to being in a hospital bed in their living room. As we know each case is different, but the need for those living with and/or loving a pALS, it is helpful to have an understanding of ALS. This article written by a nurse provides some great information and insights https://www.independenceplus.com/a-nurses-perspective-8-things-i-learned-while-caring-for-patients-with-als/
What advice can you share with family members of newly diagnosed pALS? What do you wish you would have known?
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