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    • #16082
      McKenna Baum
      Participant

      Greetings everyone. My name is McKenna and my father has recently been diagnosed with ALS at age 50. His amazing team of doctors has referred us to two different trials, one being the CHAMPION ALS trial. As a family, we feel sort of lost of which to pick. Any opinions or guidance would be greatly appreciated. Here is the link to the trial below.

      https://clinicaltrials.gov/ct2/show/NCT04248465

    • #16091
      Dagmar
      Keymaster
    • #16094
      Lowell Stewart
      Participant

      I too face two competing trials. One in Gainesville will test Metformin which is has been shown to slow progression in mice with the C9orf72 mutation. The other is the Healy platform trial which will take place in the New Orleans area. The Healy trial hasn’t started screening while the Gainesville trial has. I consulted with my neurologist and she recommended the Healy trial. As long as the trial starts screening in time I’ll follow her suggestion. If you have a neurologist you trust I would follow their recommendation.

    • #16093
      Kerry Winkler
      Participant

      Hi McKenna,

      A great new resource, the ALS Signal – Clinical Research Dashboard, was recently published by the I AM ALS organization. You can find it here: https://iamals.org/alssignal/

    • #16125
      McKenna Baum
      Participant

      Thank you so much for all of the helpful information everyone!

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