Tagged: ALS, C9, clinical trials, Fight ALS, Genetic disease, pALS, SOD1
- This topic has 3 replies, 4 voices, and was last updated 3 years ago by
Cindy.
-
AuthorPosts
-
-
May 30, 2020 at 10:40 am #15459
Many areas have started to ease off the restrictions during the COVID-19 pandemic. Many pALS and caregivers were already following some of the CDC recommendations. Most of us did have to start doing some things like wearing a mask. As restrictions are lifted, what CDC recommendations will you continue to follow? Will you wear a mask when you go in to public buildings and stores? Will you remain 6 feet away from others? In what ways has this experience changed you behaviors?
-
June 1, 2020 at 4:53 pm #15471
What a good topic to discuss Amanda!
I am amazed at how many people are treating this phase of the pandemic as if it was a tornado or hurricane that just blew through – – “OK folks, all clear, you can go out now.”
Nothing has changed from the first day the virus appeared. Nothing. We still don’t have a vaccine… and, we still can catch it. To me, all that happened is that we had a nation-wide tutorial/experiential in how to best avoid getting sick: wash your hands, don’t touch your face, wear a face mask and, practice social distancing.
So, I wonder at the thought pattern of those who feel it is a “choice” to mask or not-mask. When people don’t wear a mask, they’re just increasing the risk for the rest of us – – especially for those of us with pre-existing health conditions like ALS.
Until there is a vaccine available, and I have been vaccinated… I’ll be wearing a mask (and following all the other logical recommendations). I have patience.
-
June 2, 2020 at 10:32 am #15478
I completely agree with you, Dagmar. I will continue to be very cautious about where I go, and I’ll make sure to wear a mask and practice social distancing. Some of my friends are venturing out to restaurants but I don’t feel it’s worth taking the risk at this point. Cases are still increasing in many states. I may try to meet up with a friend or two in a local park but we’ll be wearing masks and sitting six feet apart and using our cell phones to be heard if we have to…(-:
-
June 2, 2020 at 2:43 pm #15483
I was about to have outpatient PT when Covid struck and all was postponed. The PT center is opening up again with restrictions and protocols. However, I am not ready to take any chances quite yet. And so I will wait.
-
-
AuthorPosts
- You must be logged in to reply to this topic.