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  • Cindy replied to the topic Starting Back Up in the forum Research Topics 1 month ago

    I am seen by the Temple clinic team in Philadelphia. Right now appointments are by telemedicine. It definitely takes longer to get an appointment. Temple is an approved site for the platform trial out of Massachusetts and the trial of Centaur. Neither trial has been launched at Temple due to Covid, although all the preliminary contracts and…[Read more]

  • Igor, I am reading your remarks. Please keep posting. Thanks for sharing your knowledge and insight. Cindy

  • Amanda and Profile picture of CindyCindy are now friends 1 month, 1 week ago

  • I was about to have outpatient PT when Covid struck and all was postponed. The PT center is opening up again with restrictions and protocols. However, I am not ready to take any chances quite yet. And so I will wait.

  • Cindy replied to the topic Discussing ALS in the forum Living With ALS 2 months ago

    When I was diagnosed I told my family that Lou Gehrig and I have more in common than our love of baseball. I tried to keep it as light as I could. I’m 3 1/2 years in since symptoms began. Limb onset. Feet and legs. Slow progression. Just beginning in fingers and hands. We moved into a 55 plus community. We did tell our neighbors and knew who to l…[Read more]

  • Cindy became a registered member 7 months, 3 weeks ago

    • Hello Cindy,
      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns or even…[Read more]

    • Hello Cindy,and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]

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