Alma Carr
Forum Replies Created
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For me my one essential would be my enteral syringe since I am totally dependent on tube feeding.
I went to Mt. Rainier National Park for one week from So. Calif. and had a good time a couple weeks ago. About a month ago, went to Denver and Rocky Mtn Natl Park. I guess my other essentials or that make my life easier, are iPad to use writing pad, my phone for text to speech app. Of course, push comes to shove, I use paper and black sharpie. Another “essential” would be the extra tube I was given to have on hand just in case.
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Sandra, thank you. There’s a CBD place nearby, I think I’ll check it out. However, I need an oil or liquid bc I can’t swallow pills, bulbar sucks! So I have a feeding tube.
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Judy, I did take tudca then stopped. Not sure if it even helped. My big issue is in the bulbar area. Extremely difficult to speak, swallow food, soft foods are impossible, luckily I can still walk, well I’m noticing my right leg is weakening so I’m blessed this far…well, to a certain extent.
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Sandra, I’m curious about the CBD you take for excess saliva. I’m using atrophine drops and don’t feel it helps all that much.