CHERYL A KUHTZ
Forum Replies Created
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I recently got my feeding tube. My supine vital lung capacity was in the 60s, and I wasn’t able to get adequate hydration, because I choke easily on liquids. I decided to move forward with the feeding tube even though I can eat real food without choking.
The surgery was not a big deal, and the tube is not as annoying as I thought it would be. They sent me the IsoSource, which I didn’t like. I requested Kate Farms formula, which is much better. Both formulas made me feel so full that I couldn’t eat solid food, so at this time I only use the tube for fluids. I am taking 30 grams/day of L-serine through the tube. I dissolve it in warm water and have had no trouble with the tube plugging up. When I was taking the formula, it got plugged a few times. I flushed with club soda, and it took care of the problem. I am happy that I got the tube now, so I don’t have to worry as much about my FVC score making the surgery a risk.
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A-accept
L-learn
S-shift
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Dagmar, I have not had any adverse reactions to the L-serine. I take 15 grams in the morning mixed in orange juice and 15 grams in the early evening with juice.
Cheryl
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I am part of the clinical trial that Dr. Stommel is conducting at Dartmouth-Hitchcock, and I have been taking 30 grams of L-serine daily. It’s probably too soon to tell if it’s helping, but I think the research is quite promising. It isn’t a cure, but the human subjects in the small initial trial as well as the vervets have shown a significant reduction in progression of symptoms. I believe the trial is still recruiting patients, but you can also purchase L-serine on Amazon. The movie Toxic Puzzle, which can be seen on Amazon Prime is very informative on the subject of BMAA and L-serine.