ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Danielle Uskovic

Home Members Danielle Uskovic
show less show more
Profile picture of Danielle Uskovic

@danielle

  • Activity
  • Profile
  • Friends 19
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Do you have difficulty eating or drinking? in the forum Living With ALS 2 years, 1 month ago

    Great advice Dagmar!

    I have bulbar onset so speech and swallowing have been my major challenges to cope with.

    For me:

    1. I monitor my daily calorie and protein intake via an app. It’s easy to not meet your nutritional requirements when you have bulbar onset because of the difficulty swallowing.

    2. I avoid soft breads, dry breads, anything too…[Read more]

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 1 month ago

    It’s my bad Dagmar because I asked for the list.

    I sincerely wasn’t trying to railroad the discussion about muscle twitching. I’m just super interested in all the supplements our fellow pALS take.

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 1 month ago

    Thanks so much Stephen for the list. This is brilliant. 🙏🏼

    I’m currently experimenting with a range of different supplements too. I’m trying to manage my energy, twitching and cramps. My dietitian recommended increasing my water intake for the cramps and this has helped immensely.

    Dagmar,

    I do understand where you’re coming from but som…[Read more]

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 1 month ago

    Igor,

    There’s some really good forums I discovered on Facebook because of Bill and Andy on here.

    It’s probably worth you joining those groups and putting this discussion there. Literally hundreds of active pALS and cALS in…[Read more]

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of Stephen GreerStephen Greer are now friends 2 years, 1 month ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 1 month ago

    Igor

    There are plenty of organisations now especially in the USA that will fund research. I AM ALS . ORG is one of those. Here in Australia it’s Fight MND.

    Have you thought about proposing these ideas to PhD students at the Universities and colleges? Then going to these non profit ALS organisations with the research to ask for funding?

    I think…[Read more]

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 1 month ago

    Hi Stephen

    You have some great advice.

    I’m interested in what supplements you are taking. Are you able to please share?

    Warmly Danielle

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of SusanSusan are now friends 2 years, 1 month ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Does ALS slow you down? in the forum Living With ALS 2 years, 1 month ago

    Susan,

    Are you doing any exercises to maintain your mobility in your hands and legs for as long as possible?

    I’m late to the game on this, but after reading some posts from Dagmar (and blog) and getting some proactive advice from my new PT &  OT, I do a number of mild exercises daily.

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Does ALS slow you down? in the forum Living With ALS 2 years, 1 month ago

    Hi Lisa

    I know what you mean about buttons and zippers. Like Dagmar I’ve done away with most clothing that involves zippers and buttons. Elastic waistbands are my new BFF. I’ve also done away with tights that I used for the gym. The struggle was too much. Luckily they’ve found a good home with my daughters.

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic A fast way to win ALS not totally but … (part 1) in the forum Research Topics 2 years, 1 month ago

    @givst I’ve read this and will check out power plate.

    Thanks for being passionate about ALS and writing about it 😊

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of Lisa BonahoomLisa Bonahoom are now friends 2 years, 1 month ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Why ALS patients shouldn’t wait for fast appeared drug and therapies? in the forum Research Topics 2 years, 1 month ago

    I agree with Chad. Igor this is an interesting and great read.

    Not sure if you’ve read “Chasing my Cure” by David Fajgenbaum? It’s a remarkable story of a young doctor diagnosed with a rare and terminal illness that decided to spearhead finding a cure to his disease.

    He found a drug already available on the market, for something completely…[Read more]

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic Does ALS slow you down? in the forum Living With ALS 2 years, 1 month ago

    Hi @bonolisa
    Like you and our friends @givst @jaycat and @marianne-opillagmail-com I also have bulbar onset.

    I’m constantly learning everyday how to manage the symptoms. I’m glad we have a forum like this to discuss how to manage normal everyday activities that can be a struggle to those with ALS.

    My friends and family have learnt that I’m…[Read more]

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of OwenOwen are now friends 2 years, 1 month ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of Diana BellandDiana Belland are now friends 2 years, 2 months ago

  • Profile picture of Watti

    Watti and Profile picture of Danielle UskovicDanielle Uskovic are now friends 2 years, 2 months ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of IgorIgor are now friends 2 years, 2 months ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 2 months ago

    Hi @ownlife I’ve sent you a message with my 12 week update.

  • Profile picture of Danielle Uskovic

    Danielle Uskovic replied to the topic CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 2 months ago

    Hi All,

    I’m currently on this trial. I’m located in Sydney Australia. I’ve been on the trial for 4 months. I was recruited last year and had the screening done in early February.

    Happy to answer any questions you have about it.

    @dagmar-munn @ownlife @diana @jonm @terris100

  • Load More
Profile Photo Maria Berger Profile Photo Paula

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • Would you seek out Albrioza treatment?
  • Would you seek out Albrioza treatment?
  • Would you seek out Albrioza treatment?
  • Would you seek out Albrioza treatment?
  • Would you seek out Albrioza treatment?

Members

Newest | Active | Popular
  • Profile picture of Gail A
    Gail A
    Active 3 hours, 42 minutes ago
  • Profile picture of Lisa
    Lisa
    Active 6 hours, 43 minutes ago
  • Profile picture of Eric Kentor
    Eric Kentor
    Active 9 hours, 5 minutes ago
  • Profile picture of Ray Chandler
    Ray Chandler
    Active 10 hours, 7 minutes ago
  • Profile picture of Kathy stitz
    Kathy stitz
    Active 14 hours, 2 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Recent Posts

  • MDA & ALS Care Center’s Alan Pestronk Wins MDA’s Tribute Award
  • Circling Back Around: Finding Patterns in Life With ALS
  • NeuroSense Joins EverythingALS to Advance ALS Treatments

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?
Verify you are not a robot

Forgot your details?

I remember my details

Create Account

Verify you are not a robot