Forum Replies Created

  • galina-pantsevich

    Member
    September 2, 2019 at 4:07 pm in reply to: pALS Roundtable Discussion: What do YOU Want to Know?

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  • Every day, germinated grains and fresh quail eggs on an empty stomach. All information has to be found on the Internet, unfortunately, and not from doctors (the most important question that worries me is to slow down the progression, I’m more panicked than my mother is ready to change places with her if it were possible (!

  • Thank you very much for your attention and answer! My mother was diagnosed two months ago, and she noticed her first muscle weakness at the beginning of the year. Today, she has weakness in both hands, but she herself can button up and write messages, she has a limp on one leg, she has a weakness in the hip contour, but she can also take care of the garden and the echoes. I was ready to accept her condition, I thought that the progression slowed down, but two days ago her condition worsened and went into a panic (! We partly changed the dinta to a more proteinaceous one, take riluzole, neuromedin, carbamazepine (although it doesn’t relieve muscle spasms very much shins at night), dietary supplements DMAE, SAMe, Choline & inositol, omega3,

  • galina-pantsevich

    Member
    June 11, 2019 at 7:38 am in reply to: Do you have difficulty speaking? (part 1)

    I started having problems with speech two days ago, some letters at the end of words are difficult to pronounce. Please share your experience of how long you can maintain a conversational function, what exercises to do.