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  • pALS Roundtable Discussion: What do YOU Want to Know?

    Posted by Dagmar on August 26, 2019 at 12:32 pm

    You are invited to sit down (virtually, that is!) and join in our weekly pALS Roundtable discussion.

    This week we are gathering suggestions from YOU and other forum members on what areas of ALS-related information you are searching for.

    For example, what kind of information are you looking for or can’t find answers to? Or are there topics that spark an opinion? To start us off, below are four suggested categories.

    Please vote in the comment section below, by choosing A, B, C, D or E – – or a combination of letters – – or even suggest a topic of your own.

    1. General news about ALS research and proposed treatments.
    2. Updates on clinical trials: those that are open for patients to join as well as clinical trial outcomes.
    3. Information on health insurance, long-term care, home care or agencies providing assistance to ALS patients and families.
    4. Tips and suggestions to adapt and live with ALS (including: home, travel, meals, adaptive equipment and maintaining physical health).
    5. All of the above.

    Let’s find out what YOU want to know! Thank you!

    diana-belland replied 4 years, 3 months ago 3 Members · 3 Replies
  • 3 Replies
  • galina-pantsevich

    September 2, 2019 at 4:07 pm

    1, 4

  • Dagmar

    September 2, 2019 at 4:52 pm

    Thank you Galina!


  • diana-belland

    September 2, 2019 at 7:22 pm

    I’m especially interested in Roundtable discussions of topics #1 and #2.   I would also appreciate a discussion of  “alternative” or “integrative” therapies for living with ALS.

    Thank you!

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