Igor

Dr. Beldlack

Sorry for my mistake 🙁

@Danielle, no more excuses FB group has a restriction to speak about research   drugs and I can write only comments.

I sent message to Mike Henson and he didn’t answer. i wrote to IamALS and alsa-national.org but no reply. I sent emails to 4 well known PhD and no reply

I think nobody (no patients, no charity funds) is interested in this idea. I…[Read more]

Dear All

Thank you that read me.

I decided to stop my researching  papers in research tree.

Thank you a lot for replays.

I still think about it ….

I am trying to promote crowdfunding project today. I’ve sent some email to popular people. I hope some of them believe me and help to promote the project.

Time is most valuable resource for me

So, I started crowfunding project and put my 100 USD first.

Target is 12 000 000 USD

I’ll try to share it as much as possible.

I think it should be seen by 12 000 000 people and we’ll be able to gather money

I saw a video where patients from phase 2 trial shown a good recovery progression.

A speaker told that this therapy slow down regression up to 80% as I remember.

I don’t like this collaboration because it is for process not for result.

I prefer this associations to reduce placebo patients and find the lobby to make FDA gives improvement for…[Read more]

Dear @Owen

Thank you a  lot of taking part in this project.

I don’t want to create any fund. I think if I have money I’ll find a fud who can take them and give grant.

It’ll be a specific grant with KPIs like time, clear result and etc

When I read this paper “NIH Grant Supports Work Into Cause of TDP-43 Protein Clumps in ALS, Alzheimer’s” I wanted to cry.

One more grant for research like a process.
It seems to me funds Universities who give grants don’t look around to support teams who most close to create an efficient drug or therapy.

Patients won’t receive anything until t…[Read more]

Thank’s

Do they have a record of it?

@Danielle, thanks a lot

@Danielle, I’ve connected to research team who knows  inhibitor for USP14 field very well. they need only grant to do the task. I was told it is a year, but if they have enough money to arrange more resources from Europe and other countries from different time zones it will be possible to work like 20 hours a day. I am sure it is…[Read more]

I think i go in right way to activate proteasome.

New paper on alsnewstoday
<h1 class=”entry-title”>Researchers Identify New Genetic Defect Linked to ALS</h1>

@Owen, I agree with you. Please read my next topic