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Igor

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@givst

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    Igor and Profile picture of AmandaAmanda are now friends 2 years ago

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    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    Dr. Beldlack

    Sorry for my mistake 🙁

  • Profile picture of Igor

    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    @Danielle, no more excuses FB group has a restriction to speak about research   drugs and I can write only comments.

    I sent message to Mike Henson and he didn’t answer. i wrote to IamALS and alsa-national.org but no reply. I sent emails to 4 well known PhD and no reply

    I think nobody (no patients, no charity funds) is interested in this idea. I…[Read more]

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    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    Dear All

    Thank you that read me.

    I decided to stop my researching  papers in research tree.

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    Igor replied to the topic Do you take edavarone (radicawa) treetmen? in the forum Living With ALS 2 years, 7 months ago

    Thank you a lot for replays.

    I still think about it ….

     

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    Igor changed their profile picture 2 years, 7 months ago

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    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    I am trying to promote crowdfunding project today. I’ve sent some email to popular people. I hope some of them believe me and help to promote the project.

    Time is most valuable resource for me

     

  • Profile picture of Igor

    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    So, I started crowfunding project and put my 100 USD first.

    Target is 12 000 000 USD

    I’ll try to share it as much as possible.

    I think it should be seen by 12 000 000 people and we’ll be able to gather money

  • Profile picture of Igor

    Igor replied to the topic NurOwn Research in the forum Research Topics 2 years, 7 months ago

    I saw a video where patients from phase 2 trial shown a good recovery progression.

    A speaker told that this therapy slow down regression up to 80% as I remember.

    I don’t like this collaboration because it is for process not for result.

     

    I prefer this associations to reduce placebo patients and find the lobby to make FDA gives improvement for…[Read more]

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    Igor and Profile picture of OwenOwen are now friends 2 years, 7 months ago

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    Igor started the topic Do you take edavarone (radicawa) treetmen? in the forum Living With ALS 2 years, 7 months ago

    I want to start edavarone treatment in USA.

    I bought 8 months package in Japan. I visited ALS clinic there. It is cheap there and it is possible to buy it remotely.

    I was told that it can slow degradation up to 40 percent.

    Do you have an experience of taking it?

    Does it help you?

  • Profile picture of Igor

    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    Dear @Owen

    Thank you a  lot of taking part in this project.

    I don’t want to create any fund. I think if I have money I’ll find a fud who can take them and give grant.

    It’ll be a specific grant with KPIs like time, clear result and etc

  • Profile picture of Igor

    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    When I read this paper “NIH Grant Supports Work Into Cause of TDP-43 Protein Clumps in ALS, Alzheimer’s” I wanted to cry.

    One more grant for research like a process.
    It seems to me funds Universities who give grants don’t look around to support teams who most close to create an efficient drug or therapy.

    Patients won’t receive anything until t…[Read more]

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    Igor replied to the topic Webinar: Ed Rapp shares “My Journey to Answer ALS” in the forum Research Topics 2 years, 7 months ago

    Thank’s

  • Profile picture of Igor

    Igor replied to the topic Webinar: Ed Rapp shares “My Journey to Answer ALS” in the forum Research Topics 2 years, 7 months ago

    Do they have a record of it?

  • Profile picture of Igor

    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    @Danielle, thanks a lot

  • Profile picture of Igor

    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    @Danielle, I’ve connected to research team who knows  inhibitor for USP14 field very well. they need only grant to do the task. I was told it is a year, but if they have enough money to arrange more resources from Europe and other countries from different time zones it will be possible to work like 20 hours a day. I am sure it is…[Read more]

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    Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    I think i go in right way to activate proteasome.

    New paper on alsnewstoday
    <h1 class=”entry-title”>Researchers Identify New Genetic Defect Linked to ALS</h1>

  • Profile picture of Igor

    Igor started the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago

    One more week of my researches left.

    I think it is a good idea to create two side therapy:

    1st side – reduce incoming PrPC flow
    2nd side – clear TDP-43 aggregates in nerve cells

    1st side description
    PrPC to PrPSc transformation looks like Henry Ford plant.
    I think it is not possible to destroy it fast.
    The best idea is to reduce inc…[Read more]

  • Profile picture of Igor

    Igor replied to the topic Why ALS patients shouldn’t wait for fast appeared drug and therapies? in the forum Research Topics 2 years, 7 months ago

    @Owen, I agree with you. Please read my next topic

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