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Igor and
Amanda are now friends 2 years ago
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
Dr. Beldlack
Sorry for my mistake 🙁
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
@Danielle, no more excuses FB group has a restriction to speak about research drugs and I can write only comments.
I sent message to Mike Henson and he didn’t answer. i wrote to IamALS and alsa-national.org but no reply. I sent emails to 4 well known PhD and no reply
I think nobody (no patients, no charity funds) is interested in this idea. I…[Read more]
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
Dear All
Thank you that read me.
I decided to stop my researching papers in research tree.
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Igor replied to the topic Do you take edavarone (radicawa) treetmen? in the forum Living With ALS 2 years, 7 months ago
Thank you a lot for replays.
I still think about it ….
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Igor changed their profile picture 2 years, 7 months ago
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
I am trying to promote crowdfunding project today. I’ve sent some email to popular people. I hope some of them believe me and help to promote the project.
Time is most valuable resource for me
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
So, I started crowfunding project and put my 100 USD first.
Target is 12 000 000 USD
I’ll try to share it as much as possible.
I think it should be seen by 12 000 000 people and we’ll be able to gather money
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Igor replied to the topic NurOwn Research in the forum Research Topics 2 years, 7 months ago
I saw a video where patients from phase 2 trial shown a good recovery progression.
A speaker told that this therapy slow down regression up to 80% as I remember.
I don’t like this collaboration because it is for process not for result.
I prefer this associations to reduce placebo patients and find the lobby to make FDA gives improvement for…[Read more]
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Igor and
Owen are now friends 2 years, 7 months ago
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Igor started the topic Do you take edavarone (radicawa) treetmen? in the forum Living With ALS 2 years, 7 months ago
I want to start edavarone treatment in USA.
I bought 8 months package in Japan. I visited ALS clinic there. It is cheap there and it is possible to buy it remotely.
I was told that it can slow degradation up to 40 percent.
Do you have an experience of taking it?
Does it help you?
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
Dear @Owen
Thank you a lot of taking part in this project.
I don’t want to create any fund. I think if I have money I’ll find a fud who can take them and give grant.
It’ll be a specific grant with KPIs like time, clear result and etc
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
When I read this paper “NIH Grant Supports Work Into Cause of TDP-43 Protein Clumps in ALS, Alzheimer’s” I wanted to cry.
One more grant for research like a process.
It seems to me funds Universities who give grants don’t look around to support teams who most close to create an efficient drug or therapy.Patients won’t receive anything until t…[Read more]
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Igor replied to the topic Webinar: Ed Rapp shares “My Journey to Answer ALS” in the forum Research Topics 2 years, 7 months ago
Thank’s
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Igor replied to the topic Webinar: Ed Rapp shares “My Journey to Answer ALS” in the forum Research Topics 2 years, 7 months ago
Do they have a record of it?
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
@Danielle, thanks a lot
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
@Danielle, I’ve connected to research team who knows inhibitor for USP14 field very well. they need only grant to do the task. I was told it is a year, but if they have enough money to arrange more resources from Europe and other countries from different time zones it will be possible to work like 20 hours a day. I am sure it is…[Read more]
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Igor replied to the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
I think i go in right way to activate proteasome.
New paper on alsnewstoday
<h1 class=”entry-title”>Researchers Identify New Genetic Defect Linked to ALS</h1> -
Igor started the topic A fast way to win ALS not totally but … (part 2) in the forum Research Topics 2 years, 7 months ago
One more week of my researches left.
I think it is a good idea to create two side therapy:
1st side – reduce incoming PrPC flow
2nd side – clear TDP-43 aggregates in nerve cells1st side description
PrPC to PrPSc transformation looks like Henry Ford plant.
I think it is not possible to destroy it fast.
The best idea is to reduce inc…[Read more] -
Igor replied to the topic Why ALS patients shouldn’t wait for fast appeared drug and therapies? in the forum Research Topics 2 years, 7 months ago
@Owen, I agree with you. Please read my next topic
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