[Jim Gregory]

I attend all Doctor appointments for my ALS wife. We carry a 8×11 sheet of paper (laminated) of a standard keyboard so she can correspond directly with the Doctor. She cannot talk so a pair of old glasses with a toy laser attached to one ear piece is used for her to spell what she wants to say. I answer some questions but she loves to answer to specific questions from the doctor. A little more time is used but we feel it is helpful to keep her in the loop with her doctors. We can discuss the feedback from the ALS staff when we get home.

[Jim Gregory]

I Am An ALS Care Giver

MY wife, Kathy, was diagnosed with ALS on February 2, 2018. Her problems started 6 months earlier in August, 2017 with hoarseness followed by slurring of speech 2-3 weeks later.

We have run the gambit as everyone else has who has been diagnosed with ALS, or any other MND, in living with and hoping to find a cure, while dealing with the daily support and care of our loved ones.

I am hoping to connect with other caregivers to share ideas, problems, and solutions.

jlg