Caregivers support and assistance
Good morning! I was reflecting on my experience with my father and several other family members who had/have ALS. Because of the hereditary link to ALS in my family, we have many connections with groups, doctors and other resources. We were very fortunate to have been involved with the St. Louis Chapter of the ALS Association. I have several cousins who work and volunteered with the Association. I think my family had connections because so many family members had/have ALS. We leaned heavily on the ALS Association and eventually Hospice. Are you finding the support you need? I’m familiar with the organizations in the Gulf Region and in Missouri, but I was hoping you could share information about the support, services and agencies that you have found in the areas that you live.
Log in to reply.