[Joanne Langfitt]

Nancy, I was diagnosed in November 2019.  Fortunately, there is an FDA approved ALS Clinic about two hours from me, and I attended my first Clinic last month.  The clinic members were numerous, positive, and very helpful; I only wish we met with them more than quarterly.  Given the time frame between clinics, I don’t know if I would relocate.  My clinic has a Mychart website, and I can ask questions of my clinic providers by email.  They generally get back to me within 2 days, and sometimes respond by telephone.  I have found that the information on the alsnewstoday.com site is extremely helpful as well.  That said, the clinic is cutting edge, and has close ties to many, many experts.  Bottom line, of course, is what works for you.  If you are going to move closer, pick a location that you will love, like mine in Charleston SC, one of the most beautiful and climate friendly cities in the nation.  Best to you.