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Multidisciplinary Clinics
I was diagnosed with ALS about six months ago. It seems to be progressing slowly for now. Currently the closest multidisciplinary ALS clinic is a nine hour drive and the closest support group is two hours away, in good weather. Another potential complicating factor is that we live in an area of the country that experiences winter five months out of the year, making transportation difficult. We are trying to evaluate the pros and cons to determine if during these early stages of ALS there are advantages to relocating, either full-time or part-time, nearer to a multidisciplinary clinic. I would be interested in reading anyone’s thoughts on the advantages or disadvantages of living closer to a multidisciplinary clinic and how important/useful/helpful it is to be closer to a clinic. Conversely, I would like to hear from anyone who did not relocate closer but in hindsight think they may have had better ALS management if they had. Thank you.
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