Forum Replies Created

  • Frank E Bock

    Member
    December 25, 2019 at 2:43 pm in reply to: Exercise and ALS (Continued)

    Have started a daily routine of massage and movement involving foot bends ,leg bends and tight body leg lowering and neck and shoulder massage.upper body weakening very quickly .when arms are in lowered position still some strength.will try to do some breathing exercises they seem to be beneficial from what i have read on the forums.Being a retired gymnastic coach I realize the importance of muscle memory work the roll it can play in learning and establishing strong connections between mind and body.Merry Christmas have a Turkey waiting for some attention .

     

  • Frank E Bock

    Member
    December 23, 2019 at 10:58 am in reply to: Was your initial diagnosis correct?

    has only been 2 weeks since diagnosis and my son who was a very high level athlete and fitness freak started experiencing weakness in the core area which lead to difficultly in walking . 2 trips to Toronto a series of emg ‘s and Mri”s and about 80 blood tests he was finally given a result which has of course resulted in shock and immediate changes to life style.He has now moved in with myself and life partner and many changes have occurred trying to make him comfortable in the home .My biggest concern after reading on the forum is the rapid loss of function occurring . He can no longer walk and now upper body is rapidly losing strength.Christmas coming and family will be visiting any suggestions as to how to handle this would be appreciated.