[Les Wood]

Hi fellow Toferson friends this is just an update or refresher if you like my name is John Wood though I am known as Les after my middle name Leslie also my father Les .Any way as I said earlier I was diagnosed in August 2012,though I I’m sure I had mild symptoms a few years before that.I am in the U Kand have my treatment still at Sheffield Royal Hallamshire Hospital every 28 days I am obviously the longest Toferson survivor in Britain and quite possibly in Europe due to the fact thr I was the first person in Britain to receive the drug I must have been on Toferson for around 8 years or so now.Like I said some time ago to begin with well certainly when I progressed to the maximum dose of 100 milligrams my health improved quite dramatically Evan appearing on the BBC national news.im now aged 70 and sorry to say that I believe the illness has overtaken the treatment.I can no longer walk,or even stand or weight bare without a wheelchair I am completely bed bound my only outing is my treatment day at the hospital and a occasional day at the horse racing to see one of my horses ( share of )race my wife drives me there and I get transferred to my wheelchair.im sorry to post such a negative review but I can’t see any point in glossing things over.Also no two persons are the same so some may benefit more than others If any of you want more detailed imformation on the Toferson treatment just reply to this message and I will endeavour to get back to you

[Les Wood]

Hi my name is Les Wood I was diagnosed in August 2012.i am on the Toferson treatment I am just starting my seventh year on it.I am the first person in the UK to be on the trial,it is now classed as a treatment,I feel the drug has helped me a great deal,I have endured around 75 lumber punctures during this time as of course that is how the drug is administered.there are I believe ten of us on the treatment which is at Sheffield Hallamshire Hospital.the staff there are brilliant and very professional.If any one wants any imformation on tis subject I am only to happy to help all I can

 

[Les Wood]

So a yes or no answer please as I can not make any sense off the different articles on Tofersen that I have read,I ask are Biogem going to continue the monthly doses of Tofersen just a yes or no answer please

[Les Wood]

I have been on the sod 1 Tofersen trial for almost five years the first person in the U.K. possibly Europe to have it I’m doing ok I was diagnosed in August 2012 my next treatment is tomorrow at Sheffield Hallamshire Hospital

[Les Wood]

I have been on the sod 1 Tofersen trial for almost five years the first person in the U.K. possibly Europe to have it I’m doing ok I was diagnosed in August 2012 my next treatment is tomorrow at Sheffield Hallamshire Hospital

[Les Wood]

Hi I was the first person in the U k possibly Europe to be put on the Toferson trial now a treatment I was diagnosed in Aug 2012 ai the Hallamshire hospital Sheffield England.I have had filming done of me and it has been on several News bulletins including the BBC I had my treatment today it went well though to honest it usually does.to begin with once put on the full dose I felt an almost immediate effect and a massive improvement but after six years and nine months,I’m not so good .talk to me I am LES WOOD honest trustful replies will be given,you can check with any doctor at the mnd research team at the hospital