@Marlon + Ness•
Joined Jun 2019 •
Active 2 years ago
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Base
Name
Marlon + Ness
Nickname
marlon-ness
Year of Birth
1970
Gender
Male
Location
Gold Coast
Relationship
Caregiver
Short Bio
My wife has ALS and was diagnosed in Feb 2016. She has familial SOD1 and her two triplet sisters and mother have already died from this awful disease. She has been taking RCH4 since diagnosis and her progression has halted since then.
How did you hear about us?
Friend
How long have you or the person that you are caring for had ALS?
Since Dec 15
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