Base

Name

Marlon + Ness

Nickname

marlon-ness

Year of Birth

1970

Gender

Male

Location

Gold Coast

Relationship

Caregiver

Short Bio

My wife has ALS and was diagnosed in Feb 2016. She has familial SOD1 and her two triplet sisters and mother have already died from this awful disease. She has been taking RCH4 since diagnosis and her progression has halted since then.

How did you hear about us?

Friend

How long have you or the person that you are caring for had ALS?

Since Dec 15

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