Forum Replies Created

  • Patty

    Member
    June 22, 2021 at 5:03 pm in reply to: Help with difficult transfers

    Hello Nina! For transfers, I have a Hoyer lift but we have not used it yet though have been trained. If you have some function, you may want to try a transfer belt— perhaps your husband can put it around your waist, hold on to it, lift you up a bit then pivot to transfer you. Easier than it sounds but best to be trained by a PT. Bought my transfer belt on Amazon.

  • Patty

    Member
    February 1, 2021 at 11:51 am in reply to: Tips for adjusting to living with a PEG (feeding tube)

    As posted elsewhere, has anyone had experience with a barium swallow test? Is so, was it difficult and also did it help with treatment? My ENT with my ALS recommends one and possible esophageal dilation to help with swallowing as time marches on. Currently I can still drink fluids and eat ( slowly, small bites, etc. ). Have some mouth/ tongue problems currently minimally or moderately affecting eating, speaking.
    Thanks to all!

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