Viewing 6 reply threads
  • Author
    Posts
    • #19111
      Nina
      Participant

      I have limbic ALS and have lost almost all use of my legs. Now I’m losing abdominal strength. My husband has been helping me with transfers but some of them are getting very difficult. He’s 72 with a bad back. I wonder how other caretakers and pALS have dealt with this. Hoyer lift? More time in bed? Any other ideas?

    • #19625
      Patty
      Participant

      Hello Nina! For transfers, I have a Hoyer lift but we have not used it yet though have been trained. If you have some function, you may want to try a transfer belt— perhaps your husband can put it around your waist, hold on to it, lift you up a bit then pivot to transfer you. Easier than it sounds but best to be trained by a PT. Bought my transfer belt on Amazon.

    • #19634
      Nina
      Participant

      Thank you Patty. It sounds like you are in the same place I am. We have a Hoyer lift but we don’t use it because it’s kind of scary. We also have a transfer belt which we should be using. We do use a sliding board for one of our transfers. In the meantime we are trying to refine our positioning and technique and see if we can continue transferring as we are.

    • #19651
      Jim Knepp
      Participant

      Please have someone show you how to use the Hoyer lift. I was an elder lawyer for 2 weeks shy of 40 years when our common disease forced me to retire. I saw many instances where the caregiver spouse harmed him or herself taking care of the invalid spouse. I had a simple question that I would ask. Who is going to take care of Nina when Nina’s Husband injures or kills himself while taking care of Nina. We have and use, when appropriate, a transfer belt and Hoyer lift. We also have a ceiling mounted SureHands lift which transfers me to and from our bed to and from my power wheelchair.

    • #19674
      Nina
      Participant

      Dear Jim, thank you so much for your advice about transfers even though it is difficult to realize there are no easy answers. The time may have come for me to start using mechanical devices. It’s hard to accept. I’m not ready!

    • #19898
      Mary Jo Peterson
      Participant

      Nina, Sorry for the late post on this subject. I too wanted to avoid using equipment as long as possible. We used a sit-to-stand lift for about a year until my arms could no longer hold me up. We transitioned to the hoyer a few months ago, with great hesitation, but in the end, it works really well for both me and my caregivers. It’s always better to be safe than sorry.

    • #19921
      Len Jax
      Participant

      Hi Nina – I can still do transfers myself but anticipate that I won’t be able to for much longer.  I live in the St. Louis MO area and two years ago I researched sit to stand and Hoyer type mechanical lifts in the area to plan for the inevitable.  I found a company called Handicare that has some awesome equipment and a showroom here.  You can make an appointment to try out all of their equipment in the showroom.

      I spent 3 hours there and tried out sit to stand lifts (powered and manual), ceiling lifts with different slings, floor lifts and lots of other things.  They have several sit to stand models that are powered and use a sling or belt if you need it.  The videos show you how they are used.  They also have several powered floor lifts that were excellent, well made and completely safe.  I have used a Hoyer lift and felt unsafe and glad it was over. (I am sure one would get used to the Hoyer also but the Handicare was great) My wife also felt very comfortable using the Handicare lift.

      They are manufactured here and also have many sling models that are better than most.  I believe they have dealers in other areas of the US and probably showrooms also.  Here is the link to their site:

      https://www.handicareusa.com/product-category/institutional/floor-lifts-institutional/sit-to-stand-lifts-institutional/

      Good luck on your quest!  I agree with Jim, take care of your husband – he is your lifeline!

      Kindest Regards

      Len

Viewing 6 reply threads
  • You must be logged in to reply to this topic.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account