[steve-L]

The first thought that popped into my mind was to have you join LinkedIn. If you’re not familiar with it, it’s a “social” site focused on professional relationships. Anyone can use it so, please, don’t be intimidated by my description of it.

One of its many features is a jobs posting. You can enter your skills, type of work, remote or on-site, etc. I follow job postings daily even though I’m retired and not looking for work.

I think this might be a really good place to start your search. Good luck to you and Steve.

[steve-L]

I’m a family member of an ALS patient so I hope you don’t mind my offering my thoughts. We lost my dad three years ago, at age 89, due to an unrelated condition. He had been symptomatic bulbar form for only 4-5 months and got his diagnosis about a month before we lost him.

Those last couple of months he kept telling me that he really wanted to do anything he could, including donating his body, so others might not have to deal with this disease. I began making phone calls and sending emails to a number of research hospitals, hoping to donate his body.

Unfortunately, I learned that there is somewhat of a long leadtime that’s involved. I guess there are a lot of factors, and time, involved in this type of donation and acceptance.

Hope this helps those who might be thinking of this type of research assistance.

Steve Landis

[steve-L]

Creighton,

I lost my dad at his age 89 three years ago. Fortunately for him it was a short passage…only three months from diagnosis until he was at rest.

I follow postings here nearly every day. Yours is one of the most inspiring I’ve seen in a long, long time. From your typing with your toes to writing this wonderful song, I’m amazed.

And I’m absolutely amazed by all who are afflicted with this terrible disease. You all are so much stronger people than I can ever hope to be.

Steve

[steve-L]

Will,

This is the first time I’ve posted a message on this site but I was so taken by your plea for help that I couldn’t not respond. I’ve become involved with ALS after losing my father (age 89) in 2019.

I contacted one of my sources at ALSA (The ALS Association here in the U.S.) and she gave me the following information:

“The UK has a very strong MND (Motor Neuron Disease/ALS) Association – they actually are the VERY involved in the international symposiums.

Here is a link: https://www.mndassociation.org/

This provides information on their care centers/multidisciplinary clinics, their help/resource line – they could potentially advocate and help him get into a center. They have many services that could be helpful to him: https://www.mndassociation.org/support-and-information/ ”

Hope this helps.

Steve Landis

[steve-L]

Dagmar,

Thanks for the copy of Lou’s speech. I have to admit I’ve never read or watched the full speech. It brought tears to my eyes as I read it.

I took the liberty of copying the text you gave us and sent it off, in an email, to fifty or so people who might appreciate it. No better way I can think of to honor Lou and to honor those who are/have been stricken with ALS.

Steve Landis