Forum Replies Created

  • tomd

    Member
    December 14, 2020 at 6:52 pm in reply to: Book recommendations

    Tuesdays with Morrie is a memoir by author Mitch Albom about his visits to his former sociology professor Morrie Schwartz as Schwartz gradually dies of ALS.

  • tomd

    Member
    December 9, 2020 at 12:08 pm in reply to: How I Learned to Love My Rollator

    I took Dagmar’s recommendation and got from Amazon a Drive Nitro Euro-Style Aluminum rollator Standard Height. I like it a lot. I use it around the house and it helps me walk better and gives me stability. The height is adjustable from 33.5 inches to 38.25 inches. I second Dagmar’s caution to be careful if you are sitting in it and try to get up while the rollator is in a locked position on a tile floor. If your pushing away from the rollator while attempting to stand, the rollator can slip backwards on the tile even if locked.

  • tomd

    Member
    October 27, 2020 at 6:06 pm in reply to: Home renovations and ALS

    One modification I made to my bathroom that I’m glad I made was to install a toilet seat bidet. It’s great when you have weak arms and loss of dexterity in your wrist and hands.

    I had to get an electrician to install an outlet next to the toilet and then hire a plumber to install the seat. Well worth it

  • tomd

    Member
    October 20, 2020 at 5:53 pm in reply to: ALS and driving

    I can still drive but its hard. My difficulty is not so much my legs but my arms, I can’t stretch them out in front of me. I have little turtle arms now, so it’s hard to shut the door and hard to reach for the steering wheel, I put the seat far forward toward the steering wheel and lean into it to get my hands on the wheel. Once I get my hands on the wheel I’m okay. Bill in his post mentioned a wheel spinner, but I don’t know what that is or where to look at one.

  • tomd

    Member
    October 18, 2020 at 12:53 pm in reply to: There’s got to be something for my soul somewhere. 

    “Let nothing disturb you

    Let nothing frighten you

    Everything passes

    But God does not

    Patience obtains all

    Whoever has God lacks nothing

    Only God sufficies

    St. Teresa of Avila

  • tomd

    Member
    September 18, 2020 at 1:46 pm in reply to: ALS Support Groups

    I live in Arizona. The Ariz Chapter has monthly support groups, which have been virtual since the start of the pandemic. While virtual meetings are not as conducive to making connections with others as an in person support group would be, still I like attending not only to learn something new, but also because it makes me aware that others are struggling and coping as I am, plus you get to know the folks at the ALS Chapter. who conduct and moderate the support groups. In addition to support groups, the AZ Chapter has been having monthly virtual socials. For example, last month they had a trivia contest, where they had 50 or so questions, and I thought was fun.