Iomar Barrett,  —

Iomar Barrett was diagnosed with ALS in April 2024. His current focus is bringing a novel gene therapy to those with sporadic ALS via Celosia Therapeutics. He is a retired hedge fund manager, based in Monaco. He is married with two young children.

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Guest Voice: The ALS progression story we don’t often see

Much of what people understand about ALS progression comes from the stories they see and hear most often — and those stories can be misleading. Social media amplifies the voices of people who have lived with the disease for years, sometimes decades. This makes perfect sense: Slower progression means…