Humor and grief collide as my husband and I discuss burial plans
A couple of weeks ago, I lined up a daytime caregiver for my husband, Todd, so I could take…
Articles by Kristin Neva
How does caregiver stress from my husband’s ALS affect me?
After years of living on the edge of life and death with my husband’s ALS, I sometimes wonder if…
Assessing the effects of a weekend without my antidepressant
Last Friday night, I pulled a prescription bottle out of the cupboard, preparing to take my daily antidepressant —…
We celebrate small wins for wheelchair accessibility with ALS
Since the point where my husband, Todd, needed a wheelchair because of his ALS progression, he’s had to navigate…
How my husband keeps pushing the limits with ALS
We often feel isolated now that my husband, Todd, is homebound because of ALS. He’s paralyzed with weak lung…
Vicarious living helps us deal with being homebound due to ALS
My husband, Todd, is homebound due to ALS and I am his primary caregiver. That often makes our lives…
The importance of telehealth grows as my husband’s ALS progresses
As my husband Todd’s ALS progressed, trips to the doctor’s office became increasingly difficult. When he was still walking,…
Why making mistakes as an ALS caregiver can be unsettling
Once when my daughter, Sara, was a baby, I made a mistake that led to a moment of sheer…
The strange calculations we make while living with ALS
One of my favorite Christmas gifts this year was balsamic vinegar — two bottles, actually — that my husband, Todd,…
Revisiting the past offers perspective on ALS progression
A memory from 12 years ago popped up on my Facebook feed. It was a video we had made for…