Vicarious living helps us deal with being homebound due to ALS
My husband, Todd, is homebound due to ALS and I am his primary caregiver. That often makes our lives…
Articles by Kristin Neva
The importance of telehealth grows as my husband’s ALS progresses
As my husband Todd’s ALS progressed, trips to the doctor’s office became increasingly difficult. When he was still walking,…
Why making mistakes as an ALS caregiver can be unsettling
Once when my daughter, Sara, was a baby, I made a mistake that led to a moment of sheer…
The strange calculations we make while living with ALS
One of my favorite Christmas gifts this year was balsamic vinegar — two bottles, actually — that my husband, Todd,…
Revisiting the past offers perspective on ALS progression
A memory from 12 years ago popped up on my Facebook feed. It was a video we had made for…
After rough times, any relief feels especially sweet
After I finished this holiday season’s wreath orders, I moved my wreath-making table out of the dining room back into…
Feeling sick and powerless as an ALS caregiver
“The essence of trauma is powerlessness.” This quote from Christian trauma therapist Colleen Ramser grabbed my attention, because…
Some caregiving tips apply to more than ALS
A couple days ago, as I was dishing up our family dinner, I popped a piece of chicken in my…
Expressions of grief and gratitude can be equally important
“Count your blessings.” “You need to be thankful for what you do have.” People often give silver-lining advice to those…
Life with my husband’s ALS is hard, but I appreciate the little things
Last week, after having my yearly mammogram, I got a call from the clinic. The nurse told me that the…