Kristin Neva

Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.

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Articles by Kristin Neva

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Expressions of grief and gratitude can be equally important

“Count your blessings.” “You need to be thankful for what you do have.” People often give silver-lining advice to those…

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Life with my husband’s ALS is hard, but I appreciate the little things

Last week, after having my yearly mammogram, I got a call from the clinic. The nurse told me that the…

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In life with ALS, I focus on finding meaning rather than happiness

In the “Barbie” movie, Stereotypical Barbie, played by Margot Robbie, is living her best day, every day, in…

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Discovering surprising new ways to release the stress from ALS

One morning last week, I turned on my phone, but it powered down almost right away. I turned it back…

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Finding space for abundance in life, even while managing grief

I’m weary after 13 years with the ALS of my husband, Todd. I started therapy in hopes…

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Living with ALS, I’ve sometimes found talk therapy beneficial

After my husband, Todd, was diagnosed with ALS, I was overwhelmed by grief and filled with anxiety about the…

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As we try out new wheelchair technology, I have much to learn

When ALS first caused my husband, Todd, to need a wheelchair, he realized he couldn’t recline too far in…

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Preparing for the future after my role as an ALS spouse and caregiver

A few weeks ago, I was catching up with a friend of mine. Among other topics, we discussed what I…

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The power of distraction when dealing with negative emotions

I’ve lived in the shadow of my husband Todd’s ALS for the past 13 years. My days have…

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When those of us living with ALS become someone’s Calcutta

“Find your own Calcutta. Find the sick, the suffering, and the lonely, right where you are — in your…

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