Sharing our vulnerability opens our hearts to one another
Last week, I set my husband, Todd, up on his computer before heading out for my weekly ukulele group. It’s…
Articles by Kristin Neva
Celebrating our 20th wedding anniversary is bittersweet with ALS
While many couples celebrating an anniversary post joyous messages and proclaim their excitement about the future on social media, I…
A 6-year-old’s childhood innocence confronts his great-uncle’s ALS
We had a young visitor this past weekend who met my husband’s disability with frank curiosity and innocent sweetness.
Why we fight for life: We do it because we’re human
One evening last week after I’d finished cooking dinner, I grew concerned. My almost 14-year-old son had gone out to…
4 actions that have helped me cope with my husband’s ALS
The years since my husband, Todd, was diagnosed with ALS have been hard for both of us, not only…
Planning for future ALS progression while not borrowing trouble
My husband, Todd, is paralyzed because of ALS, so I transfer him from bed to wheelchair, and from wheelchair…
On my birthday I had everything I wanted
A couple weeks ago, a friend asked me, “What are you going to do for your birthday?” “We’ll just have…
Reminiscing about our pre-ALS days brings joy
A family friend visited last week, prompting a trip down memory lane to the days long before my husband, Todd,…
Connections provide a sense of belonging in life with ALS
Eighteen years ago when expecting my daughter, I decided to become a stay-at-home mom. Mothering a newborn was a joyful…
Solving a problem puts a sparkle back in my husband’s eyes
Since my husband, Todd, is paralyzed from ALS, he can’t help with household chores and maintenance anymore. That puts…