As an ALS caregiver, I’m constantly evaluating cold, flu, and other risks
Last week, I was in a grocery store and noticed another shopper had an occasional cough and wasn’t covering his…
Articles by Kristin Neva
3 ways we bring energy to our marriage while living with ALS
Before my husband, Todd, had ALS, our marriage had a normal rhythm to it. He’d go to work, and…
Finding the words to express my grief about my husband’s ALS
When my two teenagers came home from school, I had them sit down to listen to the first five minutes…
Living with ALS requires ongoing problem-solving and creativity
Last weekend, my 13-year-old son, Isaac, and I spent about five hours replacing transition strips between my husband’s bedroom and…
Time away from home and ALS fuels me to keep going
My husband, Todd, and I used to enjoy heading out on adventures, whether it was driving an hour to Chicagoland…
Navigating meal preferences can be tricky with ALS and paralysis
The other evening, our daughter, Sara, read “Bread and Jam for Frances” aloud while I finished feeding dinner…
It’s difficult to plan for the future with the varied progression of ALS
The other day my husband, Todd, told me he forgot to ask the caregiver to spray out his clicker tube…
As an ALS caregiver, I’m learning and adjusting as we go
My husband’s nose wouldn’t quit bleeding this past Sunday morning, preventing him from using his noninvasive ventilator. Todd is…
Finding beauty in the little things while living with ALS
My husband, Todd, and I enjoy watching chickadees flit from a feeder that hangs from a mountain ash tree behind…
Supporting those new to ALS with lessons from my experience
On the ski trail the other afternoon, I was feeling discouraged. I hadn’t slept well the previous couple of nights…