ALS has taken my husband’s ability to play golf, but not his passion for it
About 19 years ago, my newlywed husband, Todd, bought me golf clubs. He loved the sport and thought it’d be…
Articles by Kristin Neva
Trying to see beauty after 13 years with a diagnosis of ALS
As I fed my husband, Todd, his morning breakfast, a charm of yellow finches caught our attention, flitting to and…
Getting over my reluctance to ask for help as an ALS caregiver
I don’t like asking for help, but when it’s for my husband, I’ll do it. Last Friday, after…
The ways music has comforted us while living with ALS
A friend who visited Mayo Clinic in Rochester, Minnesota, for a serious health issue posted a video on social media…
‘Burn the beaver’ and other unanticipated domestic advice
“You should burn the beaver,” my husband, Todd, said. Over the last several years, since he has been paralyzed due…
As an ALS caregiver, I’m constantly evaluating cold, flu, and other risks
Last week, I was in a grocery store and noticed another shopper had an occasional cough and wasn’t covering his…
3 ways we bring energy to our marriage while living with ALS
Before my husband, Todd, had ALS, our marriage had a normal rhythm to it. He’d go to work, and…
Finding the words to express my grief about my husband’s ALS
When my two teenagers came home from school, I had them sit down to listen to the first five minutes…
Living with ALS requires ongoing problem-solving and creativity
Last weekend, my 13-year-old son, Isaac, and I spent about five hours replacing transition strips between my husband’s bedroom and…
Time away from home and ALS fuels me to keep going
My husband, Todd, and I used to enjoy heading out on adventures, whether it was driving an hour to Chicagoland…