In designing an accessible home, we must consider livability
If we’d anticipated my husband, Todd, needing nighttime caregivers, we would’ve designed our accessible house differently, but we probably…
Articles by Kristin Neva
The satisfaction in having something besides ALS news to tell my friend
More than a dozen years ago, my friend Jana helped me process my grief after my husband, Todd, was…
‘Good Enough’ Means Something Different in Life With ALS
In the Jan. 23 episode of “The Happiness Lab” podcast, Simone Stolzoff, author of the book “The Good Enough…
Watching a Film About Robots on Mars Through the Lens of ALS
Now that my husband, Todd, is paralyzed and uses a noninvasive ventilator, leaving the house is too hard on…
How We’re Taking On New Precautions for ALS Progression
My husband, Todd, is increasingly dependent on a noninvasive ventilator as ALS continues to weaken his lungs. Over…
Searching for Markers on the Difficult Path of ALS
I followed the directions on my phone to the Lily Creek Nature Sanctuary in Michigan’s Upper Peninsula. The…
Staying Grounded in a New Year While Living With ALS
On Saturday afternoon, I was feeling apprehensive that 2023 would be an even harder year for my husband, Todd, and…
Why Dependency Is a Reality of Life With ALS
Dependency is a difficult reality of ALS. My husband, Todd, fought to preserve his independence as long as possible,…
Decorating for Christmas Feels Like an Antidote to the Sadness of ALS
I feel compelled to seek out beauty and create a warm home, perhaps partly as an antidote to the difficulties…
When Prayer Feels Unproductive, I Long for a Better World
Because life with ALS only gets harder as time goes by, prayer has felt increasingly unproductive for me. And…