Decorating for Christmas Feels Like an Antidote to the Sadness of ALS
I feel compelled to seek out beauty and create a warm home, perhaps partly as an antidote to the difficulties…
Articles by Kristin Neva
When Prayer Feels Unproductive, I Long for a Better World
Because life with ALS only gets harder as time goes by, prayer has felt increasingly unproductive for me. And…
Revisiting Both Sad and Happy Memories of Life With ALS
I filled the last page of another journal and then reread some of the entries over the last year. I…
The Challenge of Finding Fun Family Activities as ALS Progresses
Family fun has gotten harder to come by since my husband, Todd, was diagnosed with ALS and the disease…
A Stressful Night of Dealing With My Husband’s Breathing Difficulties
My husband, Todd, and I had a stressful night last week. While his nighttime caregiver was getting him ready…
Our Date Night Movie Hit Too Close to Home
Last weekend, my husband, Todd, and I watched the movie “The Electrical Life of Louis Wain,” about an…
Dreaming of a Life Where My Husband Doesn’t Have ALS
I sometimes dream my husband, Todd, is calling for me at night. I wake and check the time. If it’s…
As an ALS Caregiver, Activities and Downtime Require a Mental Shift
Looking back over the course of more than a decade of my husband, Todd, having ALS, I’m struck with how…
Another Close Call Reminds Me of What We Still Have as a Family
We had another close call last week. I was out mowing the fields while a nursing assistant was caring for…
As an ALS Caregiver to My Husband, I Can’t Just Call in Sick
“Two are better than one,/ because they have a good return for their labor:/ If either of them falls down,/…