Searching for Markers on the Difficult Path of ALS
I followed the directions on my phone to the Lily Creek Nature Sanctuary in Michigan’s Upper Peninsula. The…
Articles by Kristin Neva
Staying Grounded in a New Year While Living With ALS
On Saturday afternoon, I was feeling apprehensive that 2023 would be an even harder year for my husband, Todd, and…
Why Dependency Is a Reality of Life With ALS
Dependency is a difficult reality of ALS. My husband, Todd, fought to preserve his independence as long as possible,…
Decorating for Christmas Feels Like an Antidote to the Sadness of ALS
I feel compelled to seek out beauty and create a warm home, perhaps partly as an antidote to the difficulties…
When Prayer Feels Unproductive, I Long for a Better World
Because life with ALS only gets harder as time goes by, prayer has felt increasingly unproductive for me. And…
Revisiting Both Sad and Happy Memories of Life With ALS
I filled the last page of another journal and then reread some of the entries over the last year. I…
The Challenge of Finding Fun Family Activities as ALS Progresses
Family fun has gotten harder to come by since my husband, Todd, was diagnosed with ALS and the disease…
A Stressful Night of Dealing With My Husband’s Breathing Difficulties
My husband, Todd, and I had a stressful night last week. While his nighttime caregiver was getting him ready…
Our Date Night Movie Hit Too Close to Home
Last weekend, my husband, Todd, and I watched the movie “The Electrical Life of Louis Wain,” about an…
Dreaming of a Life Where My Husband Doesn’t Have ALS
I sometimes dream my husband, Todd, is calling for me at night. I wake and check the time. If it’s…