As an ALS Caregiver, Activities and Downtime Require a Mental Shift
Looking back over the course of more than a decade of my husband, Todd, having ALS, I’m struck with how…
Articles by Kristin Neva
Another Close Call Reminds Me of What We Still Have as a Family
We had another close call last week. I was out mowing the fields while a nursing assistant was caring for…
As an ALS Caregiver to My Husband, I Can’t Just Call in Sick
“Two are better than one,/ because they have a good return for their labor:/ If either of them falls down,/…
Having Grit Matters in Choosing Medical Interventions With ALS
My 16-year-old-daughter, Sara, watched a TED Talk by Angela Duckworth on grit in her AP Language class. Sara was not…
How I’m Finding Solace in Creative Work
On my daily walk, I take a detour from the field and into the woods because I’m on the hunt…
Trying to Prepare for the Future: It’s Worth the Thought Now
After college, I worked at an after-school youth program. I loved my work, and I made ends meet on my…
How We’re Living With Purpose in Our Struggles With ALS
This past weekend, my husband, Todd, coached our son, Isaac, in making and installing a shelf in our daughter’s bedroom.
How Caregiving for a Spouse With ALS Has Aged Me
Last week at Walgreens, the cashier asked me if I got the senior discount. I’ve never been asked that before,…
Celebrating Today While Wondering About the Future
As summer comes to an end, we’ve recently passed a couple milestones. Our son, Isaac, celebrated his 13th birthday at…
People With ALS Need More Support From Medicare and Other Programs
Power wheelchairs are expensive, and while Medicare covers the base cost, many beneficial features are an additional out-of-pocket expense for…