Celebrating Today While Wondering About the Future
As summer comes to an end, we’ve recently passed a couple milestones. Our son, Isaac, celebrated his 13th birthday at…
Articles by Kristin Neva
People With ALS Need More Support From Medicare and Other Programs
Power wheelchairs are expensive, and while Medicare covers the base cost, many beneficial features are an additional out-of-pocket expense for…
I Feel It When I Lose a Coping Mechanism for Stress
“Are you ever going to go faster, Mom?” my 12-year-old son, Isaac, asked earlier this summer when I caught up…
The Challenges of Hiring Nighttime ALS Caregivers
“It’s just one night. It’ll be fine,” my husband, Todd, said after his night caregiver contacted me late one evening…
‘Life Is Pain’: Living Day by Day With ALS
Months after my husband, Todd, was diagnosed with ALS, our church’s worship leader asked us to participate in a…
Circling Back Around: Finding Patterns in Life With ALS
I remember those days when it was hard to get out of the house with our newborns. Two weeks after…
Rediscovering Music and Memories in Our Marriage and ALS Journey
Music had been a source of connection and mild contention early in my relationship with my husband, Todd, but it…
Appreciating the Small Victories While Living With ALS
My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I…
Flying ‘Into the Light of a Dark Black Night’ With ALS
One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made…
Finding Necessary Distractions From the Challenges of Life With ALS
It’s nice to have distractions from the difficulty of life with ALS, so I was in a pretty good…