Circling Back Around: Finding Patterns in Life With ALS
I remember those days when it was hard to get out of the house with our newborns. Two weeks after…
Articles by Kristin Neva
Rediscovering Music and Memories in Our Marriage and ALS Journey
Music had been a source of connection and mild contention early in my relationship with my husband, Todd, but it…
Appreciating the Small Victories While Living With ALS
My husband, Todd, has ALS and is paralyzed, so not only do I cook all the meals, but I…
Flying ‘Into the Light of a Dark Black Night’ With ALS
One evening, I took my daily walk in the Nara Nature Park in Houghton, Michigan. As I made…
Finding Necessary Distractions From the Challenges of Life With ALS
It’s nice to have distractions from the difficulty of life with ALS, so I was in a pretty good…
We Are Always Preparing to Manage Life on Our Own
When my 12-year-old son, Isaac, went to mow the grass last week, he noticed that one of the tires had…
What Risks Are We Willing to Take?
“What if Todd had aspirated while you were on your spring break trip?” someone asked me. That’s the type…
Reflecting on 12 Years Since the ALS Diagnosis
“Kristin, if you can’t choose joy for yourself, then do it so Todd’s remaining days and years won’t be miserable,”…
When There Isn’t Time to See a Tree Grow
As I left our house to get the kids from school, the tree was gone. A contractor’s crew was removing…
Honoring Family During a Memorial Day Visit to the Cemetery
Every Memorial Day, I go with my mom, daughter, and son to the Lakeside Cemetery in Hancock, Michigan, to attend…