While living with ALS, panic leads to stress again and again
A friend who stopped by for a visit last weekend asked my husband, Todd, “Anything new?” “Not really,” he said.
Articles by Kristin Neva
Cooking together remains a joy, even when one of us has ALS
Before my husband, Todd, had ALS, he enjoyed cooking. He often made omelets on Saturday mornings. He was skilled…
Building a home amid the loss and uncertainty of ALS
Last Sunday, on the morning of our 22nd wedding anniversary, as I was getting my husband, Todd, out of bed,…
An unwelcome visitor adds unnecessary stress to our ALS life
I was on schedule Monday morning to get out the door by 11:45 until I had an unwelcome visitor. I…
How to support people affected by ALS
I was recently asked, “What can I do to support someone diagnosed with ALS?” I thought back to the…
How joy and sorrow have marked our years of birthdays
When I checked my email last Wednesday morning, I was delighted to see a message in my inbox titled “Birthday…
How a landscaping project energized me as an ALS caregiver
Thirteen years ago, we built an accessible home to accommodate my husband Todd’s progressive disability due to ALS. A…
What we’ve learned about ALS progression over 15 years
It’s hard to believe my husband, Todd, has been living with ALS for over 15 years. His limbs are…
People with ALS should be able to proactively get feeding tubes
After my husband Todd’s ALS diagnosis in 2010, we regularly monitored the forced vital capacity (FVC) of his lungs.
Considering the fragility of life, with or without ALS
In 2012, two years after my husband, Todd, was diagnosed with ALS, he and I made a trip to…