Relearning to be kind to myself as an ALS spouse and caregiver
My frustration brought me to tears today, and I had to take a step back and remember to care for…
Articles by Kristin Neva
A friend offers this caregiver a look back to a time before ALS
I caught up with an old friend last weekend. We were in a moms’ group when our now college-age children…
As the colors change, I’m bracing for another winter with ALS
Cooler-than-average temperatures these last few weeks are turning our maple trees red, reminding me that winter is just around the…
While living with ALS, panic leads to stress again and again
A friend who stopped by for a visit last weekend asked my husband, Todd, “Anything new?” “Not really,” he said.
Cooking together remains a joy, even when one of us has ALS
Before my husband, Todd, had ALS, he enjoyed cooking. He often made omelets on Saturday mornings. He was skilled…
Building a home amid the loss and uncertainty of ALS
Last Sunday, on the morning of our 22nd wedding anniversary, as I was getting my husband, Todd, out of bed,…
An unwelcome visitor adds unnecessary stress to our ALS life
I was on schedule Monday morning to get out the door by 11:45 until I had an unwelcome visitor. I…
How to support people affected by ALS
I was recently asked, “What can I do to support someone diagnosed with ALS?” I thought back to the…
How joy and sorrow have marked our years of birthdays
When I checked my email last Wednesday morning, I was delighted to see a message in my inbox titled “Birthday…
How a landscaping project energized me as an ALS caregiver
Thirteen years ago, we built an accessible home to accommodate my husband Todd’s progressive disability due to ALS. A…