Small changes are helping me run the ALS race to the ‘finish line’
I wish I could shake the sadness I feel as my husband Todd’s caregiver after 15 years with ALS.
Articles by Kristin Neva
How life has changed since my husband’s first birthday with ALS
Last week, my husband, Todd, celebrated his 55th birthday — a milestone we never anticipated after he was diagnosed with…
A project to work on together offers us a chance at getting unstuck
“What do you think about having one thimbleberry design on one side of a mug and a different one on…
Relearning to be kind to myself as an ALS spouse and caregiver
My frustration brought me to tears today, and I had to take a step back and remember to care for…
A friend offers this caregiver a look back to a time before ALS
I caught up with an old friend last weekend. We were in a moms’ group when our now college-age children…
As the colors change, I’m bracing for another winter with ALS
Cooler-than-average temperatures these last few weeks are turning our maple trees red, reminding me that winter is just around the…
While living with ALS, panic leads to stress again and again
A friend who stopped by for a visit last weekend asked my husband, Todd, “Anything new?” “Not really,” he said.
Cooking together remains a joy, even when one of us has ALS
Before my husband, Todd, had ALS, he enjoyed cooking. He often made omelets on Saturday mornings. He was skilled…
Building a home amid the loss and uncertainty of ALS
Last Sunday, on the morning of our 22nd wedding anniversary, as I was getting my husband, Todd, out of bed,…
An unwelcome visitor adds unnecessary stress to our ALS life
I was on schedule Monday morning to get out the door by 11:45 until I had an unwelcome visitor. I…