Building a Care Team for the Marathon of ALS
Help has come and gone over the past decade since my husband, Todd, has had ALS. When it became too…
Articles by Kristin Neva
When Anger Manifests as Road Rage
Driving in our small town is usually pretty chill. People let each other in and don’t cut one another off.
A Taste of the Past
When my husband, Todd, was diagnosed with ALS, I grieved the loss of our dreams and our future together, but…
The Many Challenges of Getting Out
Normally, we live much of our life at home. My husband, Todd, has ALS and is paralyzed. He spends…
Time Travel With ALS: What If We Could?
I’ve been thinking about time travel after watching a couple movies with my husband, Todd, who has ALS. We enjoyed…
The Pressure of Caregiving Makes Self-care Difficult
Knowing that so much is riding on me creates a lot of pressure. I don’t get sick days, vacation, or…
Grabbing Bits of Beauty to Rejuvenate
“I am so sick of being sick,” Todd said. He’s having trouble kicking this bug that he’s been fighting for…
ALS + a Cold = Stress x 10
My husband, Todd, came down with a cold last week. At this stage of his ALS progression, any cold is…
Remembering Our Shared History Strengthens Our Relationship
“Can you believe our little Fafa finished ninth grade?” I asked my husband, Todd, as I flushed his feeding…
Looking Back on 11 Years of Our Joyful Sorrow
On occasion, I’ll page through the photo books my husband, Todd, made for me as Christmas gifts. I feel a…