Because of ALS, I’m Doing Things I Never Envisioned
When I met my husband, Todd, I was a renter, so I didn’t need to worry about home maintenance. I…
Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
When I met my husband, Todd, I was a renter, so I didn’t need to worry about home maintenance. I…
It’s hard to find guides for the grief that accompanies a long, progressive terminal illness. Loss is often talked about…
My mind can easily spiral into anxiety if I let it. I got selected for jury duty. Along with my…
“Be nicer,” my daughter whispered to me when I was on the phone telling a restaurant employee my pizza takeout…
“I forgot how dark it is all the time,” my brother commented when he visited us in Michigan’s Keweenaw Peninsula…
This Christmas season, we reflect on Jesus’ entering into this beautiful, yet broken world. God incarnate entered into human life…
It’s time again to send our annual Christmas letter and picture card to our friends and family. Since my…
On Saturday morning, I lay cuddled next to my husband, Todd, in bed. I could feel his thigh muscles pulse…
I cried as I listened to an episode of the “Everything Happens” podcast. Writer Samantha Irby described growing…
I’ve written before about how the world has been shrinking for my husband, Todd, and me. Some activities, such…