I’m Always Wondering About the Emotional Impact of ALS
“Be nicer,” my daughter whispered to me when I was on the phone telling a restaurant employee my pizza takeout…
Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.
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“Be nicer,” my daughter whispered to me when I was on the phone telling a restaurant employee my pizza takeout…
“I forgot how dark it is all the time,” my brother commented when he visited us in Michigan’s Keweenaw Peninsula…
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I asked my husband, Todd, why he thought our relationship worked as well as it does. I was preparing to…