Growing Up With a Parent’s Illness
I cried as I listened to an episode of the “Everything Happens” podcast. Writer Samantha Irby described growing…
Articles by Kristin Neva
How ALS Affects the Hierarchy of Needs
I’ve written before about how the world has been shrinking for my husband, Todd, and me. Some activities, such…
‘Once Upon a Time’ Becomes ‘Once When He Still Could’
My office offers retreat, in that it only has wall décor we acquired before ALS upended our lives. Over my…
When Positivity Becomes a Problem
Last week, we had an early snowfall, even for Michigan’s Keweenaw Peninsula. Snow frosted the tips of trees and…
We Are Both Patients
I asked my husband, Todd, why he thought our relationship worked as well as it does. I was preparing to…
Our Bittersweet Family Life
We had an unseasonably warm fall day while Todd’s sister was visiting from out of state last week. I asked…
Creativity Is a Life-giving Activity
We had snow in the air last week, reminding me that Christmas is coming, and with it, one of my…
Finding Strength to Keep Going
On most days, I walk three laps around the fields on my mom’s property next to my home. My…
Finding My People
I cried again as I read yet another social media post by a caregiving spouse whose husband just died from…
The Burden of Knowing the Future
Lulu Wang’s film “The Farewell” is based on an actual lie. The 2019 comedic drama looks at a family’s…