My office offers retreat, in that it only has wall décor we acquired before ALS upended our lives. Over my…
Kristin Neva
Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.
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Articles by Kristin Neva
Last week, we had an early snowfall, even for Michigan’s Keweenaw Peninsula. Snow frosted the tips of trees and…
We Are Both Patients
I asked my husband, Todd, why he thought our relationship worked as well as it does. I was preparing to…
Our Bittersweet Family Life
We had an unseasonably warm fall day while Todd’s sister was visiting from out of state last week. I asked…
We had snow in the air last week, reminding me that Christmas is coming, and with it, one of my…
Finding Strength to Keep Going
On most days, I walk three laps around the fields on my mom’s property next to my home. My…
Finding My People
I cried again as I read yet another social media post by a caregiving spouse whose husband just died from…
The Burden of Knowing the Future
Lulu Wang’s film “The Farewell” is based on an actual lie. The 2019 comedic drama looks at a family’s…
Perspective can be hard to come by with ALS, but writing has helped me keep my head above water. I’ve…
My husband, Todd, and I celebrated our 17th wedding anniversary in late August with a date at Fitzgerald’s, a…