Signs of spring encourage me amid the difficulties of life with ALS
Signs of spring appear every day outside my kitchen window here in northern Michigan, even as my own life feels…
Articles by Kristin Neva
In living with ALS, I’m OK and not OK
In the opening stanza of “For When People Ask,” poet Rosemerry Wahtola Trommer writes: “I want a word…
Why it’s good to have a backup wheelchair
We didn’t realize how much my husband Todd’s comfort depended on his custom-fit power wheelchair until he had to go…
A short break from caregiving was good for my mental health
Last week for spring break, I traveled with my son from snowy Michigan to sunny Florida. Siesta Key was just…
How we’re living in the middle chapters of ALS
It’s hard to live in limbo with the slow but relentless progression of my husband Todd’s ALS. A couple…
Finding what’s unique about each person with ALS
After decades of classic cross-country skiing, I realized that the groomed track is too wide for me, and it got…
Wheelchair options and features for improving life with ALS
“I can’t believe I could’ve had longer footrests this whole time,” my husband, Todd, said this morning as he peered…
Advocating for Congress to save Medicare’s telehealth coverage
It’s become exceedingly difficult for my husband, Todd, to leave our home now that he’s in an advanced stage of…
My husband and I partner to handle the stress of life with ALS
Lines from a Shania Twain song have been running through my head the past few days: “You’re still…
Despite the lows of a respiratory illness, we’re fighting for more time
It’s been a rough couple weeks since my husband, Todd, came down with a respiratory illness. The first weekend…