The thoughts that follow when living with ALS and a virus
“I’m not going to write a column this week,” I told my husband, Todd. “All I can think about is…
Articles by Kristin Neva
I love finding bonus uses for ALS equipment
This afternoon, I loaded our household trash into the back of my husband’s accessible van. After opening the rear hatch…
Walking the ALS tightrope between safety and independence
Moments of daily life with my husband Todd’s ALS frequently put both of us in panic mode. It makes…
Finding new equipment for ALS management feels like a win
For more than a decade living with my husband Todd’s ALS, I’ve been the finder and procurer of…
Finding things to look forward to, even with ALS
With shorter days and overcast skies lasting for weeks due to lake-effect snow, darkness comes quickly after sunset here on…
Revisiting the past is bittersweet when living with ALS
As we head into the new year, I’ve been in decluttering mode. I sorted through my linen closet and discarded…
Finding moments of warmth during the winter of ALS
I recently listened to a podcast called “The Art of Manliness.” The episode was titled “The Winter Mindset — How…
How fixing an old snowmobile brought family memories full circle
My husband, Todd, was diagnosed with ALS in June 2010. That winter, Todd and I, along with our 4-year-old…
As my caregiver duties increase, I need to let other things go
In the field next to our home, a stand of more than 100 Fraser firs provide boughs for my wreath-making…
We need more help for ALS family caregivers in this country
It’s been a rough season lately in terms of finding care for my husband, Todd. One of his long-term nighttime…