A short break from caregiving was good for my mental health
Last week for spring break, I traveled with my son from snowy Michigan to sunny Florida. Siesta Key was just…
Articles by Kristin Neva
How we’re living in the middle chapters of ALS
It’s hard to live in limbo with the slow but relentless progression of my husband Todd’s ALS. A couple…
Finding what’s unique about each person with ALS
After decades of classic cross-country skiing, I realized that the groomed track is too wide for me, and it got…
Wheelchair options and features for improving life with ALS
“I can’t believe I could’ve had longer footrests this whole time,” my husband, Todd, said this morning as he peered…
Advocating for Congress to save Medicare’s telehealth coverage
It’s become exceedingly difficult for my husband, Todd, to leave our home now that he’s in an advanced stage of…
My husband and I partner to handle the stress of life with ALS
Lines from a Shania Twain song have been running through my head the past few days: “You’re still…
Despite the lows of a respiratory illness, we’re fighting for more time
It’s been a rough couple weeks since my husband, Todd, came down with a respiratory illness. The first weekend…
The thoughts that follow when living with ALS and a virus
“I’m not going to write a column this week,” I told my husband, Todd. “All I can think about is…
I love finding bonus uses for ALS equipment
This afternoon, I loaded our household trash into the back of my husband’s accessible van. After opening the rear hatch…
Walking the ALS tightrope between safety and independence
Moments of daily life with my husband Todd’s ALS frequently put both of us in panic mode. It makes…