My husband and I partner to handle the stress of life with ALS
Lines from a Shania Twain song have been running through my head the past few days: “You’re still…
Articles by Kristin Neva
Despite the lows of a respiratory illness, we’re fighting for more time
It’s been a rough couple weeks since my husband, Todd, came down with a respiratory illness. The first weekend…
The thoughts that follow when living with ALS and a virus
“I’m not going to write a column this week,” I told my husband, Todd. “All I can think about is…
I love finding bonus uses for ALS equipment
This afternoon, I loaded our household trash into the back of my husband’s accessible van. After opening the rear hatch…
Walking the ALS tightrope between safety and independence
Moments of daily life with my husband Todd’s ALS frequently put both of us in panic mode. It makes…
Finding new equipment for ALS management feels like a win
For more than a decade living with my husband Todd’s ALS, I’ve been the finder and procurer of…
Finding things to look forward to, even with ALS
With shorter days and overcast skies lasting for weeks due to lake-effect snow, darkness comes quickly after sunset here on…
Revisiting the past is bittersweet when living with ALS
As we head into the new year, I’ve been in decluttering mode. I sorted through my linen closet and discarded…
Finding moments of warmth during the winter of ALS
I recently listened to a podcast called “The Art of Manliness.” The episode was titled “The Winter Mindset — How…
How fixing an old snowmobile brought family memories full circle
My husband, Todd, was diagnosed with ALS in June 2010. That winter, Todd and I, along with our 4-year-old…