Revisiting the past is bittersweet when living with ALS
As we head into the new year, I’ve been in decluttering mode. I sorted through my linen closet and discarded…
Articles by Kristin Neva
Finding moments of warmth during the winter of ALS
I recently listened to a podcast called “The Art of Manliness.” The episode was titled “The Winter Mindset — How…
How fixing an old snowmobile brought family memories full circle
My husband, Todd, was diagnosed with ALS in June 2010. That winter, Todd and I, along with our 4-year-old…
As my caregiver duties increase, I need to let other things go
In the field next to our home, a stand of more than 100 Fraser firs provide boughs for my wreath-making…
We need more help for ALS family caregivers in this country
It’s been a rough season lately in terms of finding care for my husband, Todd. One of his long-term nighttime…
A new experience at home is especially meaningful with ALS
Life at home with ALS becomes like “Groundhog Day,” the 1993 film starring Bill Murray, in which the main…
Why I can be thankful in the bad situation of life with ALS
As I drove through town, I cringed reading a church’s changeable-letter sign: “Be thankful for everything that happens to you.
A do-it-yourself approach to mental health while caregiving
I’m a do-it-yourself kind of gal. This has served my husband, Todd, and I well over the last 14 years…
Reading others’ stories reminds me that I’m not alone
Sometimes I find perspective when I listen to other rare disease communities. ALS News Today is just one publication of…
Why building an accessible home was the right choice for us
Sometimes people reach out to me or my husband, Todd, to get our advice on building an accessible home. We…