ALS both magnifies and steals joy from everyday moments
On a beautiful fall evening recently, my son had a junior varsity football game. I prepared to go by helping…
Articles by Kristin Neva
A friend’s visit reminds me of what now seems a lifetime ago
A friend from a lifetime ago rolled down an accessible path leading to Lake Superior in my husband’s backup power…
Making a commitment conditional is often necessary as a caregiver
Committing to be out of the house is tricky because my husband, Todd, has ALS, making him paralyzed below…
The chapter in which our daughter goes away and her father cries
My daughter, Sara, is beginning her freshman year at a university a couple hours from us, and last Saturday was…
Taking pleasure in the ‘normal’ activities we can still do
Last week on NPR’s “Morning Edition,” correspondent Ashley Westerman talked about Ukrainian women getting manicures. “It’s just part…
Private caregiver wanted — because I need to sleep
A month ago, one of my husband’s nighttime caregivers gave notice that she won’t be able to work beyond the…
Oh, the hugs I’ve missed as times have changed
“I really want to go to your performance,” my husband, Todd, told our daughter, Sara, who was starting a weeklong…
A morning on the beach, reflecting on past visits and stages of ALS
A couple years after my husband, Todd, was diagnosed with ALS, we moved to the Keweenaw Peninsula of Michigan…
A family project offers a break from a normally passive life
Twelve years ago, my husband, Todd, and I installed bamboo flooring in three bedrooms and the living room of our…
A good meal makes living with ALS a little better
“I’ve learned a lot of stuff I wish I’d known 30 years ago,” my husband, Todd, said after eating a…