Good memories sustain us when life with ALS is hard
I like the Maroon 5 song “Memories” because I’m soothed by the melody, borrowed from Johann Pachelbel’s…
Articles by Kristin Neva
What is contentment when ALS is in the picture?
This morning, while my husband, Todd, was sleeping in the next room, I read a few chapters of Brian…
Years after diagnosis, we’re still learning how to best manage ALS
The other day I was using the brush hog on my tractor to mow a field when I noticed…
ALS both magnifies and steals joy from everyday moments
On a beautiful fall evening recently, my son had a junior varsity football game. I prepared to go by helping…
A friend’s visit reminds me of what now seems a lifetime ago
A friend from a lifetime ago rolled down an accessible path leading to Lake Superior in my husband’s backup power…
Making a commitment conditional is often necessary as a caregiver
Committing to be out of the house is tricky because my husband, Todd, has ALS, making him paralyzed below…
The chapter in which our daughter goes away and her father cries
My daughter, Sara, is beginning her freshman year at a university a couple hours from us, and last Saturday was…
Taking pleasure in the ‘normal’ activities we can still do
Last week on NPR’s “Morning Edition,” correspondent Ashley Westerman talked about Ukrainian women getting manicures. “It’s just part…
Private caregiver wanted — because I need to sleep
A month ago, one of my husband’s nighttime caregivers gave notice that she won’t be able to work beyond the…
Oh, the hugs I’ve missed as times have changed
“I really want to go to your performance,” my husband, Todd, told our daughter, Sara, who was starting a weeklong…