ALS makes it hard for my husband to participate in group conversation
“I didn’t realize how weak my voice was until I was in a room full of chatter and background noise,”…
Articles by Kristin Neva
Hoping for better technological solutions for people with ALS
Since my husband, Todd, was diagnosed with ALS 14 years ago, I’ve been on the lookout for technology that…
Enjoying a bit of respite from being my husband’s caregiver
I’m cautious about leaving my husband, Todd, alone because ALS has compromised his lung function. Todd can usually tell…
As an ALS caregiver, I focus on hobbies close to home
After my husband, Todd, was diagnosed with ALS, we moved from Wisconsin to my childhood hometown in the Upper…
Finding purpose in parenting with ALS
After my husband, Todd, was diagnosed with ALS at age 39, he grieved the loss of his career and…
Why our daughter’s high school graduation day was extra special
Last January, my sister-in-law asked what our plans were for my daughter Sara’s high school graduation. She wondered if she,…
Finding new strategies to improve my mental health as a caregiver
“Why are you bouncing?” my daughter asked me the other day as I prepared the medications and supplements that…
Lessons for living with ALS from my recent nature walk
Nature calms me and nourishes my soul amid the challenges of giving care to my husband, Todd, who has…
Life with ALS is hard whether it’s a sprint or a marathon
My son joined middle school track this year, and after a few days of practice, my husband, Todd, asked…
When a loved one has ALS, the effects of trauma are ever present
As a caregiver for my husband, Todd, who has ALS, I’ve experienced numerous traumas in the 14 years that…