When a loved one has ALS, the effects of trauma are ever present
As a caregiver for my husband, Todd, who has ALS, I’ve experienced numerous traumas in the 14 years that…
Articles by Kristin Neva
The small things bring meaning and joy in life with ALS
I make lists to keep track of everything I need to do in addition to taking care of my husband,…
Letting go of material things as ALS progresses
A decade ago, I purchased a fireproof lockbox to secure important papers, such as birth certificates, Social Security cards, and…
My husband is now navigating sixth nerve palsy on top of ALS
My husband, Todd, woke to double vision after a week of severe headaches. He was discouraged because his vision was…
Time away from caregiving for my husband was restorative
Last week, my kids and I drove from Michigan’s Upper Peninsula to the Milwaukee area for spring break. I have…
Remembering our active life in the early years of ALS
I recently connected with another spousal caregiver who wondered how I felt about life now that my husband, Todd, has…
Finding the best language to talk about disability
I recently came across a CNN opinion piece by writer s.e. smith titled “Jokes about disability aren’t taboo. But…
A change of scenery is helpful for mental health with ALS
“I’ve noticed a decline in my mental health this week,” my husband, Todd, observed after a week of being…
A scary incident made us rethink emergency communication methods
Our family had another close call recently that caused us to our reexamine our methods of emergency communication. Due to…
Humor and grief collide as my husband and I discuss burial plans
A couple of weeks ago, I lined up a daytime caregiver for my husband, Todd, so I could take…