Register Now for Global Genes’ RARE Patient Advocacy Summit
Registration is now open for Global Genes‘Â 2021 RARE Patient Advocacy Summit. This year’s hybrid event will be livestreamed…
Articles by Shayna Korol
NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration
Registration is now open for the 2021 Rare Diseases and Orphan Products Breakthrough Summit, which will be held virtually…
Advocates Lobby US Congress During Virtual Rare Disease Week
More than 600 people participated in the 10th annual Rare Disease Week on Capitol Hill 2021, held virtually July…
US Patient Groups Give Thumbs-Up to Rule Against Surprise Billing
The National Organization for Rare Disorders (NORD) is applauding the Biden administration for announcing a rule to protect…
Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds
AllianceRx Walgreens Prime, a specialty and home delivery pharmacy, is partnering with TailorMed, a healthcare technology company, to help lower…
Nominations Open for 2022 Eurordis Black Pearl Awards
Nominations are now open for the worldwide 2022 Black Pearl Awards from Eurordis-Rare Diseases Europe. The 12 award…