News

The ALS Association is inaugurating its new Nevada Chapter after the group joined 39 affiliates throughout the country to work in collaboration with the local community in order to support finding effective treatments and a cure for amyotrophic lateral sclerosis (ALS). The National Board of Trustees of the association recently praised…

In a new study entitled “Exome sequencing of case-unaffected-parents trios reveals recessive and de novo genetic variants in sporadic ALS,” researchers report to have identified rare genetic variants underlying sporadic cases of amyotrophic lateral sclerosis. The study was published in the journal Scientific…

A new study on amyotrophic lateral sclerosis (ALS) provided evidence that certain areas of gray matter (GM) are disproportionately and asymmetrically vulnerable to the pathology of ALS. The study entitled “Exposing asymmetric gray matter vulnerability in amyotrophic lateral sclerosis” was published on the…

Positive results are in for Neuralstem, Inc.‘s phase 2 clinical trial “Dose Escalation and Safety Study of Human Spinal Cord Derived Neural Stem Cell Transplantation for the Treatment of Amyotrophic Lateral Sclerosis.” The trial, received by the FDA in…

Robert Bowser from Barrow Neurological Institute and Adriano Chio from the University of Turin, Italy were recently awarded with the 2015 Sheila Essey Award by the American Academy of Neurology and the Amytrophic Lateral Sclerosis (ALS) Association. This award recognizes scientists’ research and contributions toward the prevention, management and eventual cure of ALS. Both researchers will receive the award…

The Muscular Dystrophy Association (MDA) continues to enhance its research and healthcare services programs and has recently hired two new Scientific Program Officers: Amanda Haidet-Phillips and Laura Hagerty, both Ph.D. They will be reporting to Grace Pavlath, also Ph.D, who joined MDA in the past year to be the Scientific Program Director…

A clinical trial led by Dr. Marta Kaminska from the McGill University Health Center in Canada is currently recruiting participants to enroll in a study to assess the use of non-invasive home ventilation by patients with amyotrophic lateral sclerosis (ALS) using the iVAPS mode. The study is entitled…

The Society for Brain Mapping and Therapeutics (SMBT) 12th Annual World Congress Black Tie Gala was held on Saturday, March 7, 2015 at the Los Angeles Millennium Biltmore Hotel, Los Angeles, CA, during which the Society awarded the “Beacon of Courage and Dedication Award” to Professor Stephen Hawking — a living ALS medical miracle. Recorded on…

The Augie’s Quest initiative is hosting a 10 Year Reunion Bash on Friday, March 13. The event, which is being organized together with the 34th Annual IHRSA Tradeshow and Convention is taking place at the JW Marriott, in Los Angeles, California and the funds raised are going to be used to support the ALS Therapy Development…

‘My-own-voice,’ a system for patients who are losing their ability to speak due to diseases such as amyotrophic lateral sclerosis (ALS) to record and later use their voice to communicate, was presented at the Annual International Technology and Persons with Disabilities Conference (CSUN). The Acapela…