ALS News Today Community › Forums › Living With ALS › Dry mouth › Reply To: Dry mouth
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MG Community Member
MemberMay 30, 2024 at 3:18 pmRight around when was diagnosed I started having dry mouth at night. Tried a few things but discovered xylemelts and have been using them for over a year. They say to use two, but I keep only one on my bedside table. When I wake up because my mouth is dry, I put it between my cheek and gums and go back to sleep. Problem solved. It always works.
I have bulbar onset. I had dry mouth months before I had excess saliva during the day. Had two of four radiation treatments to dry up the saliva which was like a slow running faucet all day long, but it worked too well on me, leaving me with a sticky saliva which makes it hard to swallow. I am constantly suctioning, especially when I try to eat or drink anything the old-fashioned way. Good thing I have a feeding tube!
As for teeth grinding and cheek biting.. definite problems, I started with a do-it-yourself mouth guard, used dental rolls when that started bothering me, and now find that a folded paper towel gently placed between my teeth, keeping me from gnashing them without actually putting anything in my mouth, works great. My mouth opens slightly when I fall asleep and it just rests there.
As for a sore mouth from occasionally biting a cheek or lip.. Oral B Mouth Sore.. (or Sore Mouth?) works great. I can’t rinse any more so I just apply it with a Qtip.