Reply To: How old were you when you were first diagnosed?

[MG Community Member]

I was 64 (2017)when I was diagnosed with PLS (primary lateral sclerosis) a subset that is more rare than ALS but has a lifespan of about 20 years. It affects only upper motor neurons. Looking back I had symptoms in 2013, but I thought my leg weakness was because of knee problems and knee replacements in 2014. In 2016 fell and broke ankle. First saw neurologist in 2017 and Mayo Clinic officially confirmed diagnosis.

My diagnosis changed to ALS in Spring 2024 at age 71 when I started to have respiratory problems requiring more support with bipap machine and cough assist machine

Do not think age had anything to do with diagnosis.