ALS News Today Community Forums Living With ALS What ALS symptom scares you the most?

  • What ALS symptom scares you the most?

    Posted by Dagmar on December 30, 2025 at 1:01 am

    Every ALS patient has a unique journey with the disease, and symptoms can vary widely from patient to patient. But we still read and are told about all of those potential symptoms – leading us to worry and project worse-case scenarios.

    What ALS symptom scares you the most? How do you fight that fear?

    Dagmar replied 2 months ago 1 Member · 1 Reply
  • 1 Reply
  • Dagmar

    Member
    January 6, 2026 at 2:44 pm

    I think mine would be losing the ability to use my hands and arms. I have been able to accept and live with swallowing issues, very weak feet and legs, and voice and pronunciation challenges… but losing the ability to type, brush my teeth, put clothing on, etc., is a big fear for me. I realize others have already reached this stage of symptom progression, so I don’t mean to fault your life with ALS. Just sharing what I feel from my current perspective.

Log in to reply.