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How do you hire and manage paid caregivers?
Most ALS patients rely on family members and/or friends to provide primary caregiving responsibilities. But there comes a time when outside help is needed.
If you use paid caregivers, what prompted you to hire them? (ie, symptom progression, family caregiver burnout, etc.) And, did you contract with a caregiver agency or hire a private caregiver?y
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3 Replies
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We are liquidating savings – an investment! – to have a caretaker here for 4 hours/day on Mondays-Wednesdays-Fridays. We hired him through the local Comfort Keepers franchise. They scramble to provide back-up if the caretaker can’t be here to care for G. It’s been a lifesaver for me, and G. We also have friends and family who visit, but that is mostly social or to address house projects. I handle the vast majority of caretaking and I do burn out. Weepy days for sure. We are quite rural and have a big property, so having friends help with stacking wood or prepping the gardens provides joy and relief. We are fortunate to have the funds to liquidate to pay for the support, but having him help G shower, assemble the latest gadgetry/supportive technology, and be a new audience for old jokes and stories – precious and worth every $$. Going offsite for a few hours, without being on edge, getting some chores done without guilt, again, precious.
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I use home helpers. My daughter lives in CA with her husband and kids so she can be of no help to me.
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I wonder how many of our members are using their Long-Term Care insurance to pay for outside contracted home health aides?
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