• Caregivers and Family ​

  Numbness/hot and cold/stories for fundraiser

  Posted by tralia on July 18, 2024 at 12:22 pm

  I have a family member with ALS and she is complaining about the feeling of total body numbness. Does anyone here have experience caring for someone with this and what did you do for it?

  As well, my family member feels super hot and sweaty one second and then freezing cold the next. (She is not sweaty at all.) Again, does anyone here have experience caring for someone with this and what did you do for it?

  Also, I’m looking for stories for a fundraiser to raise money for ALS research.

  Tell your ALS story

  Whether you’re living with ALS, caring for someone with ALS, a researcher, physician or staff member working in the ALS community, share your experiences in a book.

  • accepting contributions of memoirs, personal essays and non-fiction poems

  • 1 story of 2,000 or less per author

  There is no payment for stories.

  Proceeds of the sale of the book will go to the ALS Society of Canada.

  • deadline: Wed. July 31, 2024

  For more information visit: ourfamilylines.ca/speakingals

  tralia replied 5 months ago 1 Member · 0 Replies
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