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    • #13239
      Diana Belland
      Participant

      “The Sean M. Healey & AMG Center at Mass General will launch the first platform trial for amyotrophic lateral sclerosis (ALS) to accelerate the development of effective and breakthrough treatments for people with ALS.”

      This quote comes from a news release from Massachusetts General Hospital, dated September 18, 2019 which can be found here:

      https://www.massgeneral.org/about/pressrelease.aspx?id=2454

      The proposed “platform trial” seems to be a very positive step in advancing research towards more effective ALS treatments and perhaps a cure.

      I would love to hear comments from others!   Thank you.

    • #13257
      Dagmar Munn
      Keymaster

      This is great news! And good to read that they are fast-tracking the selection of and analysis of these 5 proposed ALS treatments.

    • #13258
      Amanda
      Keymaster

      That’s wonderful news. Earlier today someone mentioned this hospital to me. I wonder if they were referring to the same thing?

    • #13259
      Amanda
      Keymaster

      Diana, have you read the article about this in ALS News Today yet? https://alsnewstoday.com/2019/09/23/healey-amg-center-mass-general-launches-first-als-platform-trial-five-candidate-treatments/

      This is the third time today I heard this news! How exciting!!

    • #13527
      Jonathan L Maddock
      Participant

      My neurologist is at MGH, and as of our last Tuesday’s meeting she tells me that I’m a great candidate for this platform trial. I am thrilled!! She’s recommending me to Judy Carey.

      If you’re interested, there is a link in the MGH announcement to reach out to Judy. “Carey, Judith R.,R.N.” <[email protected]>

      I truly believe that within 5-8 years there will be at least a couple of new FDA approved and much more impactful medications to combat ALS. Maybe sooner.

       

    • #13758
      Mark
      Participant
      1. I was diagnosed with ALS September 24, 2019 in Bend Oregon. My sister who lives in Boston told me about the great wok being done at MGH. I have my first appointment eith them in mid December. Can’t wait and excited to het incloved in research.
      • #13759
        Dagmar Munn
        Keymaster

        That’s great Mark – – later in December, do come back to this section and tell us all about your visit. Safe travels!

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