Viewing 5 reply threads
  • Author
    • #13239
      Diana Belland

        “The Sean M. Healey & AMG Center at Mass General will launch the first platform trial for amyotrophic lateral sclerosis (ALS) to accelerate the development of effective and breakthrough treatments for people with ALS.”

        This quote comes from a news release from Massachusetts General Hospital, dated September 18, 2019 which can be found here:

        The proposed “platform trial” seems to be a very positive step in advancing research towards more effective ALS treatments and perhaps a cure.

        I would love to hear comments from others!   Thank you.

      • #13257
        Dagmar Munn

          This is great news! And good to read that they are fast-tracking the selection of and analysis of these 5 proposed ALS treatments.

        • #13258

            That’s wonderful news. Earlier today someone mentioned this hospital to me. I wonder if they were referring to the same thing?

          • #13259

              Diana, have you read the article about this in ALS News Today yet?

              This is the third time today I heard this news! How exciting!!

            • #13527
              Jonathan L Maddock

                My neurologist is at MGH, and as of our last Tuesday’s meeting she tells me that I’m a great candidate for this platform trial. I am thrilled!! She’s recommending me to Judy Carey.

                If you’re interested, there is a link in the MGH announcement to reach out to Judy. “Carey, Judith R.,R.N.” <[email protected]>

                I truly believe that within 5-8 years there will be at least a couple of new FDA approved and much more impactful medications to combat ALS. Maybe sooner.


              • #13758
                  1. I was diagnosed with ALS September 24, 2019 in Bend Oregon. My sister who lives in Boston told me about the great wok being done at MGH. I have my first appointment eith them in mid December. Can’t wait and excited to het incloved in research.
                  • #13759
                    Dagmar Munn

                      That’s great Mark – – later in December, do come back to this section and tell us all about your visit. Safe travels!

                Viewing 5 reply threads
                • You must be logged in to reply to this topic.

                ©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

                CONTACT US

                We're not around right now. But you can send us an email and we'll get back to you, asap.


                Log in with your credentials


                Forgot your details?

                Create Account