ALS News Today Forums Forums ALS Progress ALS News Sean M. Healey & AMG Center for ALS at Mass General launches first ALS Platform

  • Dagmar

    Member
    September 23, 2019 at 5:19 pm

    This is great news! And good to read that they are fast-tracking the selection of and analysis of these 5 proposed ALS treatments.

  • Amanda

    Member
    September 23, 2019 at 8:50 pm

    That’s wonderful news. Earlier today someone mentioned this hospital to me. I wonder if they were referring to the same thing?

  • Amanda

    Member
    September 23, 2019 at 9:16 pm

    Diana, have you read the article about this in ALS News Today yet? https://alsnewstoday.com/2019/09/23/healey-amg-center-mass-general-launches-first-als-platform-trial-five-candidate-treatments/

    This is the third time today I heard this news! How exciting!!

  • Jonathan L Maddock

    Member
    October 18, 2019 at 11:48 am

    My neurologist is at MGH, and as of our last Tuesday’s meeting she tells me that I’m a great candidate for this platform trial. I am thrilled!! She’s recommending me to Judy Carey.

    If you’re interested, there is a link in the MGH announcement to reach out to Judy. “Carey, Judith R.,R.N.” <[email protected]>

    I truly believe that within 5-8 years there will be at least a couple of new FDA approved and much more impactful medications to combat ALS. Maybe sooner.

     

  • Mark

    Member
    November 12, 2019 at 10:01 am
    1. I was diagnosed with ALS September 24, 2019 in Bend Oregon. My sister who lives in Boston told me about the great wok being done at MGH. I have my first appointment eith them in mid December. Can’t wait and excited to het incloved in research.
    • Dagmar

      Member
      November 12, 2019 at 10:44 am

      That’s great Mark – – later in December, do come back to this section and tell us all about your visit. Safe travels!

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